Tip of the Iceberg?

Yesterday as I was just about to take my stress nap. There was a knock at the door, it was a neighbor from across the lake. He was recently diagnosed with Trigeminal Neuralgia, he heard that Far Guy had it..so he stopped by to compare notes. His Doctor only supplied him with a few Tegretol and he had run out of medication. The poor guy looked like a deer stuck in the headlights. We gave him as much support as we could and armed him with some good references, he is seeing a Neurologist at the Mayo Clinic next week. From our diagnosis he has Type I..and that is a good thing..he should be able to control all of his pain. Far Guy has Type II ..which is atypical..and means you have pain most all of the time. It will be interesting to see what the Doctors at Mayo have to say.

So is this just the tip of the iceberg?? We are perplexed…it seems there is a lot of Trigeminal Neuralgia going around? Is this just a coincidence..usually this is a women’s disorder..not men’s..three of these men live or have lived within two miles of each other…the others that we know of live 14 miles away…one man and one woman that live in Park Rapids. Not to mention the man and the woman who are deceased. SO that makes the grand total of people we know stand at 5 men and 2 women..and this is only supposed to occur in 1 out of 20,000 people??

Something is rotten in Denmark..how many more are there out there? I think possibly there are more. I have not decided what to do next..possibly write a letter to the Editor of the local paper and see if we get anymore input, or if we can find anymore people that suffer from this horrible disorder. At the minimum we could start a support group, Maybe I should just write an article for the local paper and they could fluff it up a bit…What do you think?

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2 Responses to Tip of the Iceberg?

  1. East Side Professor says:

    Writing to the local newspaper is a good idea… you may even want to put a notice in the paper… meet at the library (usually they have meeting rooms free for non profit groups)

  2. Far Side of Fifty says:

    I wrote a letter to the editor, we will see if it gets published. The local paper editor doesn’t like me very well since that time twenty years ago I asked her if she had eaten a tainted Thanksgiving dinner, after a very insensitive article she had in the paper. I don’t think I am real high on her list of favorite people. She even refuses to add Area voices to the main page of the paper because of me..she is trying to ignore me:)